This research was conducted in three phases: 1) formative research, 2) pilot study and 3) instrument development.
Formative Research Phase
This phase of the study involved 15 focus groups conducted with 120 participants who had not previously undergone genetic testing and had little knowledge of human genetics as assessed by screening questions during recruitment. Focus groups were [...]
Continue reading " Development and Validation of Tools to Assess Genetic Discrimination: METHOD "
A long history of noncompliance in medicine supports the vital role played by health beliefs on health behavior. Current levels of adherence to drug regimens, for example, are low. An analysis of compliance rates reported in studies of heart disease as one illustration showed that only 31-66% of patients stayed in care, between 31-58% took [...]
An increasing number of public messages, including direct-to-consumer advertising for genetic testing and therapies, reference race as shorthand to capture scientific associations relating disease susceptibility and drug metabolism. Media theory and research suggest a wide variety of stereotyping effects arise from the use of racial exemplars to illustrate specific issues. Thus, public messages referencing race [...]
Continue reading " Development and Validation of Tools to Assess Genetic Discrimination "
Our study revealed a significant black-white gap in the use of preventive care among children under-five, and these results are in consonance with other reports in the literature, further confirming the notion that race/ethnicity remains an important marker for underutilization of preventive care services. It does appear that current efforts and resources have proven inadequate [...]
Continue reading " Maternal Determinants of Pediatric Preventive Care Utilization: DISCUSSION "
The sample comprised a total of 10,525 children who were <5 years of age. Characteristics of female parents of these children are given in Table 1. In Table 2, we present the results of the comparison of selected sociodemographic characteristics between black and white female parents of the children. Black mothers tended to be older, [...]
Continue reading " Maternal Determinants of Pediatric Preventive Care Utilization: RESULTS "
Data Source
We used the 1996-2000 series of public use files from the Medical Expenditure Panel Survey (MEPS) for this analysis. The files provide an extensive data set on the use of health services and healthcare in the United States. The MEPS data contain nationally representative estimates of healthcare use; expenditure; sources of payment; and insurance [...]
Pediatric preventive care utilization is an important part of primary and secondary prevention, and immunization and dental visits represent two major activities that significantly impact child health and well-being, which may be critical in averting subsequent chronic morbidity and premature mortality. Due to its importance and in order to augment childhood preventive care use, several [...]
Continue reading " Maternal Determinants of Pediatric Preventive Care Utilization "
